RESOURCES
Organizations for Providers
American Academy of Pediatrics (AAP) Section on Hospice and Palliative Medicine (SOHPM)
Pediatric Palliative Care Coalition
- Our Section strives to improve member capacity to care for seriously ill pediatric patients and their families, to advance the overall spectrum of care provided to these patients and families, and to provide mentorship and career development for trainees interested in pediatric palliative care.
- https://services.aap.org/en/community/aap-sections/hospice-and-palliative-medicine/
- The Section on Hospice and Palliative Medicine (SOHPM) hosts a members-only listserv. When you join the Section, you will automatically be added to the members-only listserv. This listserv is used to share opportunities related to AAP advocacy, policy, and membership engagement.
- The SOHPM also hosts a public facing listserv which is open to members and non-members. This listserv is used to engage in peer-to-peer discussion among palliative care clinicians and other team members.
- https://services.aap.org/en/community/aap-sections/hospice-and-palliative-medicine/sohpm-membership-criteria/listserv/
- First Thursday of the month at 3pm Pacific Time.
- For invitation contact [email protected]
- PedPalASCNET links members of the research group and engages in resource sharing, capacity building and knowledge translation. The aim is to facilitate multi-directional communication between the research team and clinicians, policy makers, advocacy groups and families by bringing PEOLC research to these groups and enabling stakeholder feedback.
- https://pediatricpalliative.com/
- Sharing information on pediatric palliative care research.
- https://us15.list-manage.com/subscribe?u=9c9dab53829381faef9b9cb31&id=67071852de
- Bryan D. Carter, Ph.D., Department of Pediatrics, University of Louisville School of Medicine & Katherine Schwartzkopf, Psy.D., Department of Psychiatry, Indiana University School of Medicine Website Managers; Website sponsored by APA Division 54 Peds Consultation-Liaison SIG
- This website has been created for pediatric psychologists to share and access various user-friendly resources that our members can use in their day-to-day professional lives in conducting clinical activities in a variety of pediatric healthcare settings.
- Assessment Instruments
- Intervention Protocols
- Digital Resources
- Quality Improvement Procedures and Measures
- Business of Practice Information
- Forms, Brochures and Documents
- Practice/Advocacy Materials
- Training Protocols
- Email Katherine Schwartzkopf to request access: [email protected]
- Information and resources providers need to communicate with families during difficult times
- https://txpeds.org/palliative-care-toolkit
Pediatric Palliative Care Coalition
- A group of professionals, parents, and community members who provide information and resources for families with children with life-limiting conditions. Standards of practice, education about PPC, brochures for families.
- https://ppcc-pa.org
- Includes resources for providers who offer pediatric hospice and palliative care services to children living with life-limiting or life-threatening conditions.
- https://www.nhpco.org/palliative-care-overview/pediatric-palliative-and-hospice-care/brochures-for-families/
- Goal is to advance hospice and palliative medicine through enhancing learning, cultivating knowledge and innovation, strengthening workforce and advocating for public policy to achieve our vision. General, not pediatric specific.
- http://aahpm.org
- The primary goal of ADEC is to enhance the ability of professionals to meet the needs of those with whom they work in death education and grief counseling. ADEC provides information, support and resources to our international, multicultural, multidisciplinary membership and, through them, to the public and facilitates the sharing of research, theory and practice in death, dying and bereavement.
- https://www.adec.org
- PLIDA’s mission is to offer professional continuing education, the establishment of position statements and practice guidelines, unified response to issues in the media or legislation, and by creating a network for professionals to share questions, resources, insight and support.
- https://www.plida.org
- Mission is to raise the standard of care and improve access to services for traumatized children, their families and communities. Includes updated resources on racial injustice, and trauma related to COVID-19.
- www.nctsn.org
- NCTSN also offers webinars and trainings: https://www.nctsn.org/resources/training
- Centering is a non-profit organization dedicated to providing education and resources for the bereaved of all ages. They offer a range of books and resources that can be utilized for families.
- www.centering.org
- SIOP is a dynamic and vibrant global organization dedicated to increasing knowledge about all aspects of childhood cancer. Our goal is to improve and optimize treatments around the world. SIOP's vision is that no child should die of cancer.
- SIOP.nl
DIVISION 54 PALLIATIVE CARE & END-OF-LIFE SIG
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